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Things I’ve Learned About This Experience, So Far…

I had started compiling a list of things that I’ve learned since we were admitted into Children’s Hospital Boston, but this includes things leading up to Eve’s surgery:

  • Never feel like you can’t ask the nurses and doctors questions (for anything)
  • Wi-Fi is a Godsend at the hospital, for work, for family, for feeling like you’re still connected and not alone
  • I’ve used my iPhone more than my laptop for the last 3 months, it has been a huge crutch for messaging and publishing
  • I never thought we had it hard through this experience, and I’m continually reminded of this as we meet families who really do have it rough
  • People’s compassion knows no bounds
  • I’d like to forget about a lot of the things I’ve seen through this experience, but probably never will
  • Getting messages from everyone, no matter how small, is a huge pick-me-up
  • iTunes movie rentals have been a life saver (this also goes back to the hospital wi-fi point)
  • I have a hard time showing emotion
  • The medical staff has your best interests in mind, but you have a say in how most things are done
  • Eve has more strength, determination, patience, etc… than I ever will
  • Laura

    If they’re removing chest tubes, that’s a good sign. Hope today has continued to remove some of those lines/cords…… Hope you are getting some rest as well. And of course, I hope Eve is continuing to improve…..I’m sure it only gets better from this point. Nice to know the super critical period is behind you……

  • Aaron

    This is the best post I’ve read on this site… by far. I’ve been following Eve’s status throughout and I’ve been genuinely excited, concerned, scared and optimistic. Thanks for keeping us updated and informed — it means a lot to hear how Eve is doing.

  • Kris

    We have learned a lot from you too Paul.

    Thank you for keeping us all in the loop. We all care about you, A.M. and Eve. I haven’t wanted to bother you with phone calls as relaying info can be a big pain.

    Give your girls a smooth for me.

    Love you all!


  • Ang

    I think you underestimate your strength. Eve gets it from somewhere. :)

  • Michelle

    I usually go in with the mindset that parents trump doc & nurse, so while they have to do what they have to do… they have to explain it ALL to me first. If that means drawing me a picture, so be it!

    I’m glad to hear that your iphone has been helpful to you. Kailey’s surgery is June 5th and I don’t have a laptop… just the iphone.

    I am thrilled to see that Eve has been extabated!

    Please know that if you and your wife have any questions I can answer, I am an open book.

    Cheers to you all!

  • Beverly Overton-Malekebu

    Remember the only “dumb” question is the one you don’t ask. Everything is fair game when you are a parent. You are Eve’s best advocate and she is counting on you.

  • Beverly Overton-Malekebu

    OOPS!!!! I’m Eve’s HomeCare – Care Coordinator in Minneapolis. Wishing you well and hope you are back here soon. I’m keeping Larry up to date, also.

  • taulpaul

    iPhones in Hospitals {seesmic_video:{“url_thumbnail”:{“value”:””}”title”:{“value”:”iPhones in Hospitals ”}”videoUri”:{“value”:””}}}

  • Albert_Maruggi

    Wonderful post, a must for parents, not just those in the hospital.

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